Meet Aiden: 2017 Chili's Clip for Kids Honoree
If you look at Aiden Johnson, with his spiked hair, sparkly eyes and contagious laugh, you'd think of a typical 12 year old boy who loves to play video games and build stuff out of Legos. What you wouldn't know, unless he showed you his countless scars, is his journey through Norton Children's Hospital.
Aiden was born with dextrocardic, with a diagnosis of Wolff-Parkinson-White syndrome as a six month old baby. As a young child, he was often seen in the emergency department at Norton Children's for breathing treatments and re-occuring sinus issues. But after finding knots in his neck a few months shy of his 3rd birthday, his family received the news that he had high-risk acute lymphoblastic leukemia.
Aiden underwent over 3 years of chemotherapy before being called a survivor on his 6th birthday. After completing his cancer treatment, Aiden continued to have sinus and allergy issues that resulted in a primary ciliary dyskinesia (PCD) diagnosis.
Once the symptons from PCD were under control, the unthinkable happened. At just 8 years old, Aiden's cancer returned as immediate-risk acute lymphoblastic leukemia. Aiden was once again in the whirlwind of cancer treatment. But, three years later, on his 11th birthday, he became a two-time cancer survivor!
The following is brief insight into his medical journey:
- 893 does of chemotherapy
- 16 radiation treatments
- 14 surgeries
- 94 blood product transfusions
- 44 lumbar punctures (including bone marrow biopsies)
- 4 central lines
- Lost his hair 5 times
- Was an inpatient for a total of 280 nights
- Has been poked with a needle 999+ times
- Every 8 weeks, Aiden receives blood work to ensure he is still in remission.
Aiden will be monitored until age 18 for any post-cancer treatment complications.
You can help kids just like Aiden by joining in the fight against childhood cancer. Join the Aiden's Legacy Clip for Kids team today!
To learn more about Aiden's Legacy and read his full story, click here.